*Sharing for information*
A local parent called Nicole is starting up a voice room for parents of children with epilepsy to have a safe space to chat or listen or get advice and it is going to run each Wednesday 7.30pm til 8.30pm from tonight on an app called ‘Circles-online support group’.
It’s not like Facebook- It is a drop in, with no cameras - voices only! The voice rooms are free.
For a first time user-give yourself a few minutes to download the app and sign up (no card details needed, just a name, email and number) and from there you can pick the topics you are interested in joining rooms for- I picked ‘parenting challenges’ and then clicked on the ‘voice’s’ button (bottom right of my phone) and then scrolled through the list of daily voice rooms until I found Nicole’s one ‘parenting a child with epilepsy’ by Nicole Bateman Wednesday 7.30pm.
Nicole’s voice room is is open to any parents and carers in Dorset, BCP or even England.
Nicole is trying to reach lots of parents of children with epilepsy as she thinks it will be a really great space to vent and share with people who totally experience the worry and unpredictability of epilepsy for their children.
Please note-although I tested the app to see how a new user would log in and navigate the site, I have note joined any rooms myself.
Parent Carers Together would be keen to know from anyone who decides to give the app and indeed Nicole’s voice room a go, how you found it.
Thanks
Beth-PCT Admin
